LDN definitely was making a difference!

http://www.lowdosenaltrexone.org

As I mentioned in my last blog post, I accidentally stopped taking LDN for 2 nights. You'd think a person would be okay without 2 night's of medication, but due to the way that LDN works (very quickly and on a nightly/daily basis), it seems not. So in the past I was debating:

A. Is LDN even doing anything?
B. Should I stop taking it at some point?

This accidental break has confirmed that A, yes it was doing something and B, no I will not stop taking it! I feel so upset/distressed, that I effectively did this to myself. I have been suffering so badly since I missed those two doses, even though I started taking it again. I guess this may be an M.E. thing because other people with M.E. have mentioned that they struggled to adjust to it and that stopping it (I assume for longer) was like having to start it all over again.

So what has happened to me?

• Needing to nap in the afternoon - I had stopped this as I had more stamina and didn't feel the need for it
• Sleeping for an extremely long time overnight and waking completely unrefreshed - I was not sleeping so much... I was still waking unrefreshed and finding it hard to get going, but I didn't need to sleep for 12 hours because I 'couldn't stay awake' type-thing
• Apathy and lack of motivation are back
• Anxiety through the roof
• Depression - I feel as if the black dog is hanging over me
• Cognitively worse - finding it harder to find words again, can't do any mental arithmetic... can't multi-task (though that in itself had not gotten particularly better with LDN)

My pain levels have continued to be bad even while taking LDN, so in that respect that has not worsened. 

I made a mistake!

I have been taking LDN since October - straight... never missed a dose, that was until I went away last weekend. I had written LDN down on a list of things to take, but because it is stored in the fridge, I left it until last to put in my luggage and I forgot. I realised when I was on my journey, too late to turn around.

I tried not to worry about it. What's 2 missed doses after all?

Well I can tell you that 2 missed doses is BAD... baaaaaaaaad!! I took one the night I got back, and I feel pretty much as if I am battling my body again... battling it's reaction to LDN. I was brave, I think, and started back on 3.5mg despite wondering if I should really be starting back down low at 0.5 or 1.5 or something. So far, I am just hanging in there. I really feel awful - I do think it's a mixture of not taking LDN and the fact I went away for a couple of nights. I also did not sleep well whilst away, which is fairly typical of me, but also not sustainable. I must remember never to do this again. It's not good...

I have slept well since I got back, but when I wake up, it's the typical: as if I never slept. I could sleep for weeks... but I can't as I have so much to do. Of course, just to finish me off, the weather is at 90 degrees F with no A/C. I stayed inside today for that reason - I feel bad for my parrots as they can't come out because all the windows are open, so I put them in their cage outside in the shade.