Wednesday 7 August 2013

LDN definitely was making a difference!

http://www.lowdosenaltrexone.org
As I mentioned in my last blog post, I accidentally stopped taking LDN for 2 nights. You'd think a person would be okay without 2 night's of medication, but due to the way that LDN works (very quickly and on a nightly/daily basis), it seems not. So in the past I was debating:

A. Is LDN even doing anything?
B. Should I stop taking it at some point?

This accidental break has confirmed that A, yes it was doing something and B, no I will not stop taking it! I feel so upset/distressed, that I effectively did this to myself. I have been suffering so badly since I missed those two doses, even though I started taking it again. I guess this may be an M.E. thing because other people with M.E. have mentioned that they struggled to adjust to it and that stopping it (I assume for longer) was like having to start it all over again.

So what has happened to me?
  • Needing to nap in the afternoon - I had stopped this as I had more stamina and didn't feel the need for it
  • Sleeping for an extremely long time overnight and waking completely unrefreshed - I was not sleeping so much... I was still waking unrefreshed and finding it hard to get going, but I didn't need to sleep for 12 hours because I 'couldn't stay awake' type-thing
  • Apathy and lack of motivation are back
  • Anxiety through the roof
  • Depression - I feel as if the black dog is hanging over me
  • Cognitively worse - finding it harder to find words again, can't do any mental arithmetic... can't multi-task (though that in itself had not gotten particularly better with LDN)
My pain levels have continued to be bad even while taking LDN, so in that respect that has not worsened. 

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